Celine Dion’ Director Talks About Capturing the Star’s Seizure
Irene Taylor, director of the document “I Am: Celine Dion,” discusses the choice to include an grueling segment of the pop singer in the midst of a crisis.
By Annie Aguiar
Jun 25, 2024 08:20 PM
Movies |Celine Dion Had a Medical Emergency. The Camera Kept Rolling
https://www.nytimes.com/2024/06/25/movies/celine-dion-documentary-seizure-stiff-person-syndrome.html
Celine Dion was awed by the cameras. For her new documentary ” I Am: Celine Dion” (streaming on Amazon Prime Video) Celine Dion set no limitations on the content she wanted to film.
The following is an incredibly intimate picture of the body of a popular singer fighting for itself. Dion declared in 2022 that her body was suffering from stiff person syndrome. It’s an auto-immune neurological disorder which causes progressive stiffness as well as severe muscle spasms. In the course of a therapy session in her physiotherapist, which was filmed for this documentary Dion suffers a seizure. The camera continued to record through the medical emergency.
In a video interview call on Monday, director of the film, Irene Taylor, discussed filming the documentary and how the emergency of Dion was included in the final version. These are edited extracts from the interview.
How much into preproduction did it take you to learn about the illness of Dion?
I talked to her over the phone for hours I was able to talk with her for hours, but I didn’t realize she was sick. We were in the midst of the epidemic and I was not concerned about her being home. We were all there, and musicians from all over the world were out of the loop temporarily.
We reached a point where we decided to create the film. After a couple of weeks the mutual decision that her manager contacted me to contact her. I concluded that it was something serious since we were in touch that day and he informed me that Celine was sick, and they weren’t sure what the problem was. We had been filming for a few months prior to an accurate diagnosis.
After obtaining an answer, did the discussion at the table so that it was time to stop filming?
Absolutely definitely not. It was when I realized that) she was suffering from a condition without a name, and b) as I began filming, I noticed that her body was different and her face was different. I was able focus. The iris of my view decreased.